PKD Foundation

We're the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD). Founded in 1982, our vision is that one day, no one will suffer the full effects of PKD. pkdcure.org

 

PKD Foundation
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PKDCON Follow Up - Your Questions Answered

By PKD Foundation FEATURING Diana Bruen, Erum Hartung, Terry Watnick, Elise Hoover
By PKD Foundation FEATURING Diana Bruen, Erum Hartung, Terry Watnick, Elise Hoover
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April 24, 2024
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2021
46:40

PKDCON Follow Up - Your Questions Answered

PKD Foundation

D. Bruen, E. Hartung, T. Watnick, E. Hoover

47:11

Liver Cysts and Their Complications

PKD Foundation

N. Dahl

16 views
34:04

Updates rom the PKD Foundation- Research, Advocacy, and Education

PKD Foundation

A. Betts, C. Rusconi, C. Iseman

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Managing Family Life When Your Child Has PKD

PKD Foundation

G. S. Mayersohn

45:11

Nephrectomy Surgery: Understanding the Risks and Benefits

PKD Foundation

T. Watnick, J. Scalea

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45:03

Compassion Fatigue: Caregivers Need Self-Care, Too!

PKD Foundation

L. Pennington

6 views
43:42

Kidney Failure: What to Expect?

PKD Foundation

F. Rahbari-Oskoui

218 views
42:16

Best Practices for Disease Management - Working with Your Health Car…

PKD Foundation

R. Perrone, J. Ehrlich

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How to Talk to Children About PKD

PKD Foundation

K. Amatya

19:23

Genetic Testing in PKD: The Benefits and the Challenges

PKD Foundation

L. Noureddine

240 views
05:43

Supporting Your Child with PKD: Appreciation for the Healthcare Team

PKD Foundation

A. Wiesman

16:47

The Role of Geneticists & Genetic Counselors in PKD

PKD Foundation

D. Reed

06:19

A Patient's Perspective on Life with ADPKD

PKD Foundation

T. Sneddon

12:03

Beyond Kidneys: How PKD Affects Your Body - Aneurysms

PKD Foundation

T. Watnick

11:57

Cardiac Manifestations in ADPKD

PKD Foundation

M. Mrug

130 views
19:37

The Complications of Liver Cysts

PKD Foundation

N. Dahl

10 views
09:29

Novel Prognostic Imaging Biomarker Based on Individual Cyst Growth R…

PKD Foundation

H. Kim

119 views
13:56

Comparitive PKD1 and PKD2 Missense Variant Profiling Aids Molecular …

PKD Foundation

C. Sieben

60 views
08:42

Racial Disparities and Ethnic Disparities in PKD

PKD Foundation

A. Hayward

44:37

Managing Nutrition as Dietary Needs Change from Pre-Dialysis to Post…

PKD Foundation

M. Betz

72 views
45:40

Living Your Best Life Post Transplant

PKD Foundation

N. Issa

42:17

How to Manage Chronic Pain Associated with Enlarged and Heavy Kidney…

PKD Foundation

M. Hogan

114 views
46:29

Understanding Congenital Hepatic Fibrosis (CHF) and Best Practices f…

PKD Foundation

R. Fischer

6 views
42:44

Kidney Transplant: From Evaluation to Transplant

PKD Foundation

P. Dean

103 views
38:53

Genetics: How Genes Affect Your Family Tree

PKD Foundation

B. Gitomer

179 views
43:35

Talking About PKD: Patients and Caregivers Share Experiences Talking…

PKD Foundation

A. Bartels, L. Macklin, E. Mcvey, C. Mcvey, N. Kaminsky

47:32

Preemptive Transplant Panel Discussion

PKD Foundation

P. Dean, C. Miles, H. Christensen, R. Simon

10 views
11:19

BMI, Weight Loss, & ADPKD

PKD Foundation

K. Hopp

138 views
42:03

PKDCON 2021: Communicating with Your Healthcare Team

PKD Foundation

R. Lakhia

44:51

Family Planning and Achieving Reproductive Success: ADPKD and ARPKD

PKD Foundation

J. Gebb, E. Schindewolf

42:46

Basics of Clinical Care for Children with ARPKD and ADPKD

PKD Foundation

L. Guay-Woodford

111 views
44:28

Dialysis 101

PKD Foundation

B. Cowley

33 views
42:20

Emotional Impact of Managing PKD

PKD Foundation

D. Cukor

43:56

Post-Transplant - What to Expect

PKD Foundation

H. Christensen, S. Full