LGS Foundation
The Lennox-Gastaut Syndrome (LGS) Foundation is a Nonprofit Organization Dedicated To improving the lives of individuals impacted by LGS through Advancing Research, Awareness, Education, and Family Support.
At the LGS Foundation, every day we:
- Mobilize our resources to drive scientific breakthroughs for stabilizing treatments for LGS, and one day, develop preventive and reversative therapies for this devastating early-life epilepsy syndrome.
- Fight for a world where the best medical care is not based on luck and where navigating and quarterbacking the healthcare system does not fall heavily on the shoulders of overburdened caregivers and patient families.
- Build a strong, supportive, educated community.
- Offer timely, impactful support programs for patient families navigating the LGS journey.
- Build awareness within our own community and the larger epilepsy community.
Learn more about the LGS Foundation.
2024 LGS Family & Professional Conference
LGS Foundation
Genetics Made Simple
FEATURING
Gillian M. Prinzing,
Beth Rosen Sheidley
- 3 views
- October 8, 2024
LGS Foundation
Workshop: Understanding the Unique Needs of Adults With LGS
FEATURING
Jaime Twanow
- 3 views
- October 2, 2024
LGS Foundation
Advocating for a Better Future for Your Loved One: Everyone Can Be an Advocate
FEATURING
Jennifer Griffin
- 1 view
- October 2, 2024
LGS Foundation
Leveraging PELHS to Identify Risk Factors for LGS Progression
FEATURING
Juliet Knowles
- 21 views
- September 27, 2024
LGS Foundation
Understanding the Emotional Journey of LGS Families
FEATURING
Julie Lazzara
- 1 view
- September 27, 2024
LGS Foundation
What Do We Know About Lennox-Gastaut Syndrome Today?
FEATURING
Elaine C. Wirrell
- 3 views
- September 27, 2024
LGS Foundation
Exciting New Directions in LGS Research & Care
FEATURING
Tracy Dixon-Salazar
- 58 views
- September 27, 2024
LGS Foundation
Seizure Types, Seizure Action Plans, & Using Technology Devices
FEATURING
Tom Stanton,
Robert Moss
- 9 views
- September 27, 2024
LGS Foundation
The Early Years: Navigating Medical, School and Therapies
FEATURING
Jennifer Griffin,
Diana Morris Smaglik
- 1 view
- September 27, 2024
LGS Foundation
Non-Surgical Treatment Options - Anti-Seizure Meds (ASMs), Diet and Clinical Trials
FEATURING
Elaine C. Wirrell
- 70 views
- September 27, 2024
LGS Foundation
Intracranial Neuromodulation in LGS - Neuromodulation: DBS and RNS
FEATURING
Charuta Joshi
- 3 views
- September 27, 2024
LGS Foundation
Comparative Effectiveness of Palliative Surgery vs Additional Anti-Seizure Medications for Lennox-Gastaut Syndrome
FEATURING
Sandi Lam
- 20 views
- September 26, 2024
LGS Foundation
LGS Research Updates: Sleep Research
FEATURING
Renée Shellhaas
- 11 views
- September 26, 2024
LGS Foundation
Learn from Every Patient Database - Phase 2
FEATURING
Tracy Dixon-Salazar
- 2 views
- September 26, 2024
LGS Foundation
The Elephant in the Room: How to Talk About SUDEP & Mortality in LGS: The Basics
FEATURING
Jeffrey R. Buchhalter
- 13 views
- September 26, 2024
LGS Foundation
Taking Root: Growing a Community for LGS Research
FEATURING
Robert Hunt
- 10 views
- September 26, 2024
LGS Foundation
Using Circadian Rhythms to Track & Treat LGS
FEATURING
Aaron Warren
- 4 views
- September 26, 2024
LGS Foundation
Surgical Approaches & Assessments for LGS
FEATURING
M. Scott Perry
- 15 views
- September 26, 2024
LGS Foundation
Accessing Managed & Palliative Care throughout Your LGS Journey
FEATURING
Ashley Pounders
- 7 views
- September 26, 2024