LGS Foundation
The Lennox-Gastaut Syndrome (LGS) Foundation is a Nonprofit Organization Dedicated To improving the lives of individuals impacted by LGS through Advancing Research, Awareness, Education, and Family Support.
At the LGS Foundation, every day we:
- Mobilize our resources to drive scientific breakthroughs for stabilizing treatments for LGS, and one day, develop preventive and reversative therapies for this devastating early-life epilepsy syndrome.
- Fight for a world where the best medical care is not based on luck and where navigating and quarterbacking the healthcare system does not fall heavily on the shoulders of overburdened caregivers and patient families.
- Build a strong, supportive, educated community.
- Offer timely, impactful support programs for patient families navigating the LGS journey.
- Build awareness within our own community and the larger epilepsy community.
Learn more about the LGS Foundation.
2023 Meeting of the Minds Research Conference
LGS Foundation
Clinical Trial Readiness in STXBP1-Related Disorders
FEATURING
Ingo Helbig
- 75 views
- January 24, 2024
LGS Foundation
Sleep Disorders in People with DEEs: Is Better Sleep a Primary Outcome or a Mechanism to Improve Other Endpoints?
FEATURING
Robert C. Stowe
- 4 views
- January 23, 2024
LGS Foundation
What Can We Learn From Research on Sleep Disorders in Children With Autism & Other Developmental Disorders?
FEATURING
Althea Robinson Shelton
- 245 views
- January 23, 2024
LGS Foundation
Lessons Learned from Multicenter Sleep Research
FEATURING
Renee Shellhaas
- 81 views
- January 23, 2024
LGS Foundation
How Can We Measure Sleep for Clinical Trials?
FEATURING
Gita Gupta
- 154 views
- January 23, 2024
- 1
LGS Foundation
Inchstone Project: Measuring Fine/Gross Motor and Gait
FEATURING
Jenny Downs
- 1 view
- January 23, 2024
LGS Foundation
Inchstone Project: Measuring Communication and Behavior
FEATURING
Anne T. Berg
- 1 view
- January 23, 2024
LGS Foundation
CDKL5 Deficiency Disorder (CDD) Severity Scale
FEATURING
Jenny Downs
- 4 views
- January 23, 2024
LGS Foundation
Taking a Closer Look At Measuring: What's Possible?
FEATURING
Elaine C. Wirrell
- 4 views
- January 23, 2024
LGS Foundation
Hearing Directly From Families About How We Measure LGS Comorbidities: Lesson from the PCORI SOM-L Study
FEATURING
Anup D. Patel
- 6 views
- January 23, 2024
LGS Foundation
How We Currently Conduct Clinical Trials in LGS
FEATURING
Dennis J. Dlugos
- 16 views
- January 23, 2024
LGS Foundation
Voices of the LGS Community: What Do Those with LGS Deem Most Important
FEATURING
Tracy Dixon-Salazar
- 8 views
- January 23, 2024